Monday, May 21, 2012

Photo A Day May Days 13-19

Photo A Day May Day 13 - MUM

Traditionally 13 is "unlucky" but I'd have to disagree today. I am the luckiest woman in the universe. I am a Mum. It's all I ever wanted. My wish came true. Being J and H's Mum is the most beautiful gift I could ever receive. 


Everything I do is because of them and for them. 


They are joy personified. MUM is the most beautiful word I have ever heard spoken from anyone's lips especially their plump rosey ones in the days I wasn't sure if I'd hear words with real meaning from them. How wrong I was. Our connection is real and special.


I'm their go to girl for mummy kisses when they scrape a knee and mummy hugs for no reason but that they love me. 


If I never do anything else in my life but be their Mum....... It will be a full and truly happy life dripping with love. What more is there?





Photo A Day May Day 14 - GRASS

I let the "lawn mowers" in the back gate this morning to help me out before my 3 hour marathon on the weekend...... 


Andrew can be the "catcher" when it comes to their out put after inputting the grass. I don't "do" shovel duty.












Photo A Day May Day 15 - LOVE



Self Explanatory........


















Photo A Day May Day 16 - SOMETHING YOU ARE READING

Different Not Less by Temple Grandin. My hero. Temple is the most famous person with Autism in the world. I've had the unbelievably privileged experience of working with her recently through my charity work with The Autism & Aspergers Support Group Inc and I will always rate Temple's success and her life as the most inspiring, uplifting story I've heard. 

Temple's mother Eustacia is a super mum and the boys gave me a Super Mum bookmark on Mother's Day. If I can give my boys even a tenth of the understanding and support Temple's mum gave her, I will be satisfied with my efforts as their mum. Temple's Mum drummed in the lesson that Temple is "different, not less." I whole heartedly agree with that statement about my kids and all those on the spectrum. This book is a collection of inspiring stories from adults on the spectrum.  BRILLIANT!


Photo A Day May Day 17 - SNACK

I'm planning my baking schedule for a market stall I'm doing on Sunday with my gluten and dairy free goodies.... 

I do believe I'll have one of these triple chocolate rocky road mud cakes as a snack right now.... 

I'll burn it off at the gym tomorrow.












Photo A Day May Day 18 - SOMETHING I MADE





All of these are gluten and dairy free treats I made for a market stall I' unleashed my baking hobby I call Chew Choose, upon on Sunday. Banana bread, rocky road cuppies, choc mud cuppies, fairy cuppies, rum balls, mini Tiffany boxes and rocky road.... 
















Photo A Day May Day 19 - FAVOURITE PLACE

No question.... My favourite place to be is front row of a Bon Jovi concert. 

It's my happy place. I chose this shot as it's from the first song in Sydney...... The first song with the whole night ahead at a Bon Jovi concert in my home town as I'm in the front row really really is the happiest place in the world for me. 

Beats the shit out of Disneyland in my opinion. 

Sunday, May 13, 2012

Photo A Day May Days 8-12





Photo A Day May Day 8 - SOMETHING I DO EVERYDAY
Photo A Day May Day 9 - A WORD I LOVE

I missed a day BUT I can use the same photo for both themes. Love. As John Lennon said, "Love is all you need." I do it everyday and it's my favourite word. Love.




Photo A Day May Day 11 - KITCHEN

My fridge is my diary....... If it doesn't make it to my fridge door on one of the many Scooby magnets out of the box from the endless supply of Scooby Tail jelly thingos the boys eat or on my cool peg magnets... Well if it hasn't made it to there... It simply doesn't happen.

The fridge is my last bastion of free willed chaos in my otherwise very order filled life thanks to ASD routine necessity. I am comforted to open the fridge door by the treasures it holds inside (well sometimes... actually not much anymore since the 23 kilo shedding) and I am comforted by the total shitstorm of memories in the form of photos, upcoming events in the form of excursion notes, news rosters (which I can seriously NEVER find even though ALWAYS pinned to the fridge), preschool and school art and children's party invites. There's even a letter from the former minister for disability congratulating me for an award I won a couple of years back........ Shit. I'd better tidy it up I guess now I've realised how long that's been there and how obsolete most of the crap on there might be.... Or.... Perhaps I'll open the door and see if there's wine inside......






Photo A Day May Day 12 - SOMETHING THAT MAKES YOU HAPPY.

They make me happy. This picture shows them sooooo happy.

On any day. A bad day, a good day, an average day ANY day.... THIS picture makes me happy.

Happy. JOY!

Tuesday, May 8, 2012

Photo A Day May Day 7 - SOMEONE WHO INSPIRES YOU

Photo A Day May Day 7 - SOMEONE WHO INSPIRES YOU

I couldn't pick just one. My boys inspire me more than anyone else on the planet living or passed on. They each have a diagnosis of ASD that is widely considered limiting. I have watched them prove every stereotype wrong. They are both loving, affectionate, friendly boys who love playing, making friends, embarking on adventures and fill people they meet with joy. It's true. I see the reaction when J enthusiastically greets everyone he sees with reckless abandon and the joy of a soul truly free of judgement even though he is judged often. I feel the warmth a shy smile or coy greeting from H brings the special people in his life he chooses to bestow his more reserved affection upon.

To go from limited communication, developmental delays and constant frustration based meltdowns only a few short years ago to becoming the happy little boys they are who enjoy birthday parties, school, preschool, camp and every other experience they take on with such gusto is nothing short of inspiring to bear witness to.

All new experiences, sensory difficulties and new people make every day more challenging for these boys but they get through it. They thrive. They conquer. Their bravery is awe inspiring. A simple social exchange such as asking a child to play, navigating playground politics or knowing the "right" thing to do in a classroom present a child with ASD with such confusion and anxiety. These boys work through it all with encouragement, support and love from me and for each other and those around them.

Never ever tell me never for any child with ASD. Don't talk about limits. My boys will NEVER be anything but limitless in their potential.

J and H.... You inspire me to always do better and be better. I watch you guys do just that every day.




Monday, May 7, 2012

Photo A Day May - FUN, BIRD, YOU

Photo A Day May Day 4 - FUN! 

Friday afternoon fun discarded to go inside for dinner and a bath now after preschool and late afternoon play. Scooter lying in wait on the driveway BUT all weekend ahead to play all day. Ah to be 4 years old.  



4 years old and playing "appropriately," freely and with typical 4 year old abandon is even better if you ask me....  I watch their play with joy.  Fun.





Photo A Day May Day 5 - BIRD

J's first foray in Karate today at a party. Is it just me or is he channeling Daniel San doing "The Crane?" Ok, it's not perfect but he wasn't trained by Mr Miyagi....  What is note worthy is that J was just another child at that party.  So was H.  Not once did I need to "explain" a diagnosis or behaviour.  Two boys at a party with 15 kids.  A new experience, new people, new place and new skills being learned every day.  



Just an everyday little boy doing his best Karate Kid moves.





Photo A Day May Day 6 - YOU (me).

Here I am... Whether crawling through shit/mud, seeing the sun after a storm, partying, loving on my lady loves (besties), raising awareness, fighting for my babies, cuddling my family or just hanging with the hubby and trying to move forward with our life after that storm mentioned above... I am always me. I make no apologies for who, what, how I am and have a firm like it or lump it policy. I swear too much, I love too much, I sing and dance badly but enthusiastically and I drink too many cocktails when I'm out with the girls. I love love love laughing and try to find an excuse to do exactly that every day and think that laughter through tears is possibly the most beautiful feeling in the entire world. 



I'm by nooooo means everyone's cup of tea. I'm ok with that. More a cup of coffee. Strong and hot (when I scrub up AND hot tempered) and sometimes wakes you up like a slap in the face. 
I am nearly comfortable in my skin for the first time in 38 years after doing an incredible amount of work on myself physically, emotionally and spiritually over the last year and even on the bad days I don't think I'd trade my life (me) for anything else as the lessons I've learned have made me rich with not cash but life and love.


I am who I am.






Thursday, May 3, 2012

Photo A Day May - Something I Wore Today



I'm into my next project....  This is Photo A Day May and today's theme is Something I Wore Today.

I wore my sunglasses.  This picture is of my sunnies at sunset.

Not expensive or glamorous sunglasses.  Just my cheap sunnies that I use sometimes to cover tears as I watch the boys doing "normal" things or achieving "small" things.  There really is no such thing as "small" in my world.  Every day I wake up to the sound of one or both of the boys creeping not so quietly up the hall is HUGE!  We don't do small.  Everything they do makes me happy.  We do happy in size HUGE too.

The flip side is we can sometimes do sad in size HUGE.....  Oh how I did HUGE sad last year (check out the link if you want to cry with me).  So so sad in HUGE.  I am a bit of a crier in general.....  Not just in HUGE sad moments though.  I cry when I'm sad and I cry when I'm happy.  I cry when I'm inspired and I cry when I'm worried, anxious and tired.....

Contrary to popular belief....  I am pretty soft.  The tears are a river of feelings escaping from my soul.  I don't subscribe to "big girls don't cry."  I lean instead towards evolved girls AND boys cry when they need to....  I live a life of being open and giving with my emotions.  I think that my complete openness with my emotions has helped the boys grasp what sorting and processing theirs are (which is difficult for people with ASD).

I think by giving my boys the gift of expressing feelings and showing them how to express theirs has helped them bust down the old stereotypes.

I couldn't find two more loving little boys than my cuddly guys who tell me they love me at least daily.  Those moments bring yet more tears to my eyes of course.  Those moments are the HUGE ones I live openly for.

C.x

Photo A Day May - Skyline

Photo A Day May - Skyline






The rolling green hills leading up to the blue mountains under a blood red sky. Ah... Home sweet home.


Wide open spaces for the boys to run around and peace for all of us in this crazy house.  Serenity now.

C.x

Tuesday, May 1, 2012

Photo A Day Project.... Yes a new project!





I'm needing some inspiration to get the writing juices flowing.  After a month of ups and some pretty heavy downs, I'm a bit stuck for words.


In the meantime I'll be doing Fat Mum Slim's Photo A Day May......   Today's topic  is PEACE.  I asked my 6 year old to draw me PEACE.  He's developing a real interest in drawing and art.  I'm not saying he's an artistic savant by any stretch but he loves art and drawing.  It's an activity that brings HIM PEACE.  


His peace is my peace.

Enjoy.

C.xo


The list of topics are:


For those that would like some clarification, here's the list. They're open to however you want to interpret them:

1. peace {something peaceful, a peace sign etc}
2. skyline {where the sky meets land, can be buildings, the beach, forest, whatever!}
3. something you wore today {while you're wearing it or not}
4. fun! {something you do for fun - big or small}
5. bird {a bird in the sky, an ornament, a picture, a pet etc}
6. you {a self-portrait, a picture of a picture of you, your reflection in the mirror}
7. someone that inspires you {could be someone in real life, someone well-known}
8. a smell you adore {perfume, a food, flowers, anything!}
9. something you do everyday {share something from your daily routine}
10. a favourite word {a word that you love to say, write or read}
11. kitchen {can be a picture of your kitchen, something from a kitchen or a cafe kitchen etc}
12. something that makes you happy {a person, a thing, etc}
13. mum {a picture of your mum, the word mum, a mum, mother's day celebrations etc}
14. grass {the green stuff that grows on the ground etc}
15. love {something that represents love, something or someone you love}
16. what you're reading {a book, a newspaper, a blog, a sign, a note etc}
17. snack {something you're eating as a snack}
18. something you made {food, craft, a child, anything!}
19. a favourite place {a place you love being in}
20. something you can't live without {something you'd rather not go without in your life}
21. where you stand {take a photo of where you're standing}
22. pink {something pink}
23. technology {something that uses technology}
24. something new {what's something new in your life?}
25. unusual {share something a little odd or weird}
26. 12 o'clock {take a photo at noon or midnight, whatever you're doing}
27. something sweet {a candy/lolly, a cake, a person, something cute ... anything!}
28. the weather today {is it sunny, rainy, cloudy today? Shoot it!}
29. a number 
30. your personality {show us your personality in a photo, a word etc}

31. something beautiful {share something beautiful in your life} 

Autism Gratitude Project Days 15 - 30

Yep.....  I kind of got side tracked.  So typical of me.


Here's all my Autism Gratitude Project 2012 posts in abundance on one BIG post......  I'll be back later to start my new project.  A Photo A Day .......  I do LOVE a project after all. 


Autism Gratitude Project 2012 Day 15 - I am grateful for flexibility. It's definitely NOT a given in the world of ASD. Our plans have changed today and the boys have accepted that Mummy isn't feeling up to a big day out as planned. There was a time anything "scheduled" on their weekly visual planner was written in stone and non negotiable without major meltdown and trauma to us all if things changed. Redirection, flexibility and a growing understanding that just because things haven't happened exactly as we first thought doesn't mean they won't happen at all or that their world is ending. No meltdowns at all this morning, just happy shrugs and moving on to playing Wii and hanging out in the backyard enjoying the sun. The boys know we will go out for lunch next weekend and that instead of going to a busy park to play on their scooters, they can go hell for leather on our steep, dangerous, Mummy stress provoking driveway (providing helmets are worn) which they actually prefer being the wild natured smalls they are.... Happy happy gratitude filled Sunday to all!


Autism Gratitude Project 2012 Day 16 - I'm grateful for progress... My own. Two years ago I was a nervous wreck about sending my lad off to a sensory integration and social skills camp run by The Sensory Gym called Camp Jabiru. Seriously I WAS a NERVOUS WRECK! I was terrified and crippled with anxiety. I was hopelessly frightened that my son would hate the new experience and not cope. Turns out he coped fine and loved it. Today I dropped my oldest son AND his younger brother at Camp Jabiru and although I had some nervous moments about my younger son who is going for the first time and he is often unsure of new experiences and new people, I knew the boys were in good hands, would not only cope but THRIVE once they got there and climbed over the first hurdle of saying goodbye to me. I was right. After a huge first day at camp, the boys are home, happy and properly filthy as only little boys know how to become. A big week ahead with every day bringing a new camp adventure and I am appropriately (at least I think appropriately) teary about their budding independence and progress, I am so so soooo grateful I've learned to let go and model courage and bravery for my loves. A good day. A great day in fact. My gratitude cup overflows.


Autism Gratitude Project 2012 Day 17 - FARK I'M GRATEFUL FOR ALCOHOL. It's all I can manage being grateful for today. For real.


Autism Gratitude Project 2012 Day 18 - I am grateful for a day off. Nothing but me time today. I don't think I'd appreciate that quite so much if not for ASD. Rare and so very essential. Drama free, laughter filled day with my gals.


Autism Gratitude Project 2012 - Days 19, 20 and 21 (yes, I got behind) - In line with how behind I got with my project I would like to say I'm grateful for those who make my life simple. The people who provide zero drama, pull together to help me when stress is HIGH and get stuff done. For every individual who has helped me keep things simple in a very complicated week, I thank you from the bottom of my heart. I am beyond grateful.


Autism Gratitude Project 2012 Day 22 - I am soooooooooooo very grateful that preschool (the best preschool in the universe BTW and needs a gratitude update of it's own before April's end)....... Anyhoo, I'm uber grateful Preschool is going back tomorrow after school holidays. I'd best not mention school as gratitude is eluding me on THAT one yet again as I watch all of J's mainstream friends return and YET AGAIN his holidays (read, my freakin working harder than ever days) are extended by 4 days due to being in the ASD class under the ASD peak body of Australia's watch (**insert swearing about paying through the nose for HOLIDAYS NOT SCHOOL DAYS)! I'll be uber grateful on Wednesday night about school going back... For now, I'm grateful to the best freaking preschool in the freaking universe for returning to work to educate my smallest small tomorrow. I'm also grateful for Pimms although I wouldn't mind the people at Pimms increasing the alcohol content just a bee's dick for me if they happen to read this...... Pimms would go from the Number 1 cup (their slogan) to the FARKING NUMBER 1 AND TOPS CUP in my view if the alcohol was a wee bit higher..... Pass me another immediately!


Autism Gratitude Project 2012 Day 23 - Praise Jaysus I am going out soon with a few lady loves to do some volunteer work for AASG so I don't have to endure another minute of our Finley The f*cking Fire Engine DVD (on repeat ALL DAY AND ALL AFTERNOON AND LIKELY ALL NIGHT). Sooooo very grateful. This gratitude update is brought to you by respite. Our beloved respite worker shall be enduring the fire engine DVD and bless her, she will endure it with a good nature. Me....? I want to stab myself in the eyes repeatedly rather than see another episode.


Autism Gratitude Project 2012 Day 24 - I am beyond grateful for my friendship with my bestie, Vannessa. I have known Ness since high school BUT it's only over the last 4 years that we have become so completely inseparable. It also just so happens that ASD entered my life around the time Ness re-entered it after she moved to the area I live in. It certainly wasn't an easy time to become my friend as I was overwhelmed and really had nothing to give relationships as all I "did" was ASD (I still struggle with this issue as ASD is all encompassing all of the time, particularly in the early days of intervention). Vannessa has NEVER asked more of me than I can give, she ALWAYS catches me if/when I fall, she NEVER compares her life to mine or anyone else's as she completely understands we are all fighting a battle of some description and we all are just doing the best we can. She is not an ASD/special needs mum however she "gets it" and has earned the title of honorary ASD Aunty in my book. She loves my boys and look out if she thinks I've been done wrong as the girl is loyal and supportive to the ends of the universe. Outside of my immediate family and our respite worker, Vannessa is the only person I would be comfortable leaving my boys with (lucky her!) as I could walk out the door completely comfortable that she understands them, cares for them and again.... Just "gets it."  Vannessa's entire family are like my extended family and I simply love them. I am so grateful they are in our life and accept us so completely in all of our glory. An example of the phenomenal woman and parent that she is that she has raised a son who when asked if he's noticed anything "different" about the kids in our predominantly ASD/spec needs play circle of friends, he answered, "Mum, we are all just kids" and another time "Well J has lovely curly hair which is different to mine." Thank you Ness. You make it easy to be me even on the hard days. For your support over the last particularly harrowing year, I will NEVER be able to thank you enough. I love you and gratitude is just not a big enough word. 



Autism Gratitude Project 2012 Day 25 - I am grateful that I have been part of organising 2 world experts in ASD to come together for a seminar tomorrow which will help professionals AND parents learn more about ASD and in turn help those professionals and parents also come together to implement what they learn. 18 months ago I sent an email to Colorado State University on the slight chance I could get in touch with Temple Grandin and convince her to do a seminar for The Autism & Aspergers Support Group Inc - Sydney. She responded. (I've framed that email and I hang it on my fridge to read often). I couldn't convince her to travel down under as she doesn't travel anymore BUT she agreed to work with AASG and do a video link for us. Somewhere in that time frame we (the volunteer committee of AASG) thought to ourselves, why not get Professor Tony Attwood to present too and turn this into a major 2 day conference event? It shouldn't be too hard to find a venue, organise AV, sell tickets, advertise it, raise money to pay for it (a LOT of money) and pull together 2 world experts on opposite sides of the world between our paid jobs, family lives, housework (well that one doesn't really apply to me), sleepless nights, meltdowns (and they weren't all from our children but that might just have been me)..... Volunteers. Just a few volunteers with a shared interest, passion and drive to make a difference.... A very small group of passionate volunteers totally dedicated to improving the outcomes of our children with ASD and the lives of other families living the same "story" as us is about to pull off the most massive undertaking our tiny in size but huge in heart charity has ever attempted. I've had a sneak peek at our Temple video presentation (I'm allowed, I'm the president of the charity! LOL) where she answers our individual questions and I also hear from my off-sider coordinator, that Tony is settled in at his hotel and can't wait to do our seminar tomorrow. I've almost moved past stress and into excited. If not for autism, I might never have heard of Temple Grandin. Now I have heard of Temple Grandin she is quite literally my hero and a light in the lives of families living with autism worldwide. I am grateful for inspirational visionaries like Temple who give me hope. No not hope..... Absolute certainty that my boys WILL BE FULFILLED, HAPPY AND AMAZING. So grateful on so many levels. Tomorrow and Friday will be AWESOME!

Autism Gratitude Project 2012 Day 26 - I am grateful for all the help and support from the AASG team today at Tony Attwood and Temple Grandin. I AM BEYOND EXHAUSTED. Very early night and ready to do it all again tomorrow. I'm also really grateful for the amazingly positive feedback after a very stressful couple of weeks leading up to the seminar. Much love to everyone who has been kind enough to say thanks or give praise for the job the little charity that could has done. Xoxo

Nearly missed Day 27 of my autism gratitude project! I am so grateful I have the strength to learn the lesson and let it go.

Autism Gratitude Project 2012 Day 28 - I am grateful for cuddles. Stuff the stereotype! My boys LOVE cuddles with Mummy.

Autism Gratitude Project 2012 Day 29 - I am grateful for the lesson I learned to put myself FIRST now. For months I've been working on my health and fitness (body and mind). I used to be constantly sick. Remember the tonsilitis for 5 years? Yes really. I had tonsilitis for 5 years and also developed a thyroid condition that involves the big C word but is under control for now. I believe this was partially due to me mistaking "helping" others for me becoming a sponge and soaking up their pain with a desire to take it away from them or clean it up for them. A giant event happened in my own life that left no room for my "sponge" to soak up anything else. I learned cleaning up is sometimes not possible but moving on, through and up is. My journey on my physical transformation really helped my mind clear and my heart heal. I got strong physically and mentally (still working on emotionally but was making progress). I developed a bit of Teflon coating instead of the porous sponge I've been walking around as for so long. I thought Teflon was making me hard and I've been uncomfortable with it on some levels as my nature has always been to help. How could I help if I've developed this harder coating? I've been distracted for a few weeks. I started to slip... I've put myself last again. No gym for a few weeks, no meditation, no positive affirmations and only considering others needs again. A chink in the Teflon appeared. The old trusty sponge resurfaced and I've taken a huge beating mentally plus emotionally. NOW the physical signs have come along as I wasn't listening to the emotional ones. I'm sick. Miserably sick right now. Coldsore, sore throat, a level of exhaustion I remember well from the "good old constantly sick days." The old feeling of powerlessness and with it self doubt. Ok.. I'm listening. I think it's ok to have a strong coating to protect myself. Teflon can still be warm and share that warmth with others needing it but the crud (negativity) should just be able to slide right off when I am at my strongest. I realize there is always the possibility of getting burnt but am developing just enough coating to remain warm and let others clean up for themselves. It's not my job. My job for right now is to rest. Rest my body and mind until I am well again and the positive energy returns to take me back to my happy place of newly found fitness. When I am fit in my mind, heart and body I am strong. For now I'm resting though. So grateful I know I need to.

Autism Gratitude Project 2012 Day 30! On the last day of ASD awareness month I am so very grateful for all the people in the entire disability/carer community who proved that one voice no matter how small can always find another voice to shout out with them and create change. The NDIS was announced today and it is a momentous achievement for all those who have "made it real." With eternal gratitude. THANK YOU campaigners, carers and brave Australians raising YOUR voices and for making sure that soon every Australian will count. This month has had it's ups and downs and some days I found finding a "thing" during the day to be grateful about incredibly difficult because it's easy to lose focus of the big picture sometimes when the every day little things (once you put them in perspective over time) get in the way. It's pretty special to end on a high note and have the fortitude to go away and reflect on the low notes so that the lessons in those might even give me something to be grateful in the future. For now, I am grateful for my boys in all their quirky complexity and grateful I got to be their Mummy. Thanks to J and H. You make me grateful EVERY day whether during awareness months or not. The end. (Until April 2013). 


Saturday, April 14, 2012

Autism Gratitude Project 2012 Day 14


Autism Gratitude Project 2012 Day 14 - I am grateful for boundaries. My kids thrive and respond well to boundaries being set. It helps them work out what is expected/required from situations that would otherwise confuse them and see lines being blurred and confusion about exactly what they need to do. They understand that acceptable behaviour at the park, in the back yard and whilst wrestling with their therapists at The Sensory Gym might not be quite the same as what is ok at school, visiting someones house or in church (that one is J specific... See here for a post explaining THAT special interest). 

It makes all aspects of life so much easier for them (and me) after I say, "These are the rules whilst we are HERE doing THIS." They don't get it 100% right 100% of the time but it is a handy redirection tool when I need it and does in fact work most of the time. It's hard for people with ASD to understand how social situations work and what is expected so we've worked on boundary setting from very early on.  I'm so grateful the boys are capable of transferring their understanding of boundaries from one situation to another (with help and support).


I'm grateful for a much more peaceful life because of clear boundaries and expectations.......  Well at least in my family life with regards to the boys.........


The rest of my life needs a complete overhaul in this area.  I've made myself accessible to many through volunteering for my favourite charity for the last three years.  I've extended myself beyond what is simply "acceptable" in many ways and have stretched myself way too thin by not setting clear boundaries around what is OK for people to ask of me and what is perhaps taking advantage or interfering with MY time.  It's really nobody's fault but my own.  I have the disease to please and an inability to clearly say no.  I say yes to things I'm not comfortable doing and end up resenting it.  It's so annoying and I constantly kick myself for taking time away from ME and my family because I said yes to something less important to me but more important to someone else.  I've made tentative steps in this area at least.  I no longer answer my phone to ANY numbers I don't recognise, nor do I give my number out to anyone but "real life friends" as it was not unusual to receive several calls per week from people seeking counselling I am not qualified (or currently strong enough) to give.  All charity calls are now directed to the actual charity NOT to me.  

Because I've been so open I've created a situation where people have mistaken generosity with my time for a no holds barred ticket to full access into my life.  Further to that, I've been relaxed about the boundaries between what is an unspoken line between friendship, fun and frivolity and what is a serious responsibility to an organisation that has elected me to make decisions that may or may NOT be popular sometimes and acting upon them definitely not desirable within the boundaries (or lack thereof) of friendship.  I have failed to draw clear lines on many occasions because I don't like to be "bad cop."

The autism world is a minefield of politics.  The autism CHARITY world is even more so.  In my time in this world of "helping others", I've had my motives questioned by people with no real clue about who I am and what I stand for, I've had several encounters with people who disagree with decisions I've had a part in making about how we move forward as an organisation, I've faced and taken a HELLUVA lot of criticism and I've given so much of my time that I have brought myself to the brink of burnout.  I would also like to think though that maybe I've made even a tiny bit of difference to even one person struggling in a similar world to mine.  Then the other "stuff" might be worth putting up with (I'm at a crossroads about continuing as a volunteer right now you see).

Over the last few weeks, I've failed to draw clear lines between "business" (charity business) and pleasure (friendship).  In the process I became "bad cop."  I don't like it.  Again though, it's my own fault.  I did not delegate bad cop to anyone, I took it on to spare others who would more than likely dislike being the "bad guy" as much as I do.  However, because I didn't ask anyone else to carry out the more formal role of managing business in this situation, I don't really know if that's true.  Maybe every person available to me in my extensive support network would have happily taken the load on anything I asked if I had in fact asked.  I did not set crystal clear boundaries between what is my role as the president of an organisation and what is the daily, natural and relaxed exchange between friends.  Because my lines were not painted in black and white in this crazy thing called life, I'm now frustrated by "feelings" being brought into a transaction that if not for friendship being involved would be straight forward with expectations either being met or not met.  It's not an isolated incident.  I'm a serial offender.  There has not been a work/business situation EVER that I've set clear boundaries between being friends, colleagues or adversaries.  I constantly make the same mistake and try to be "popular."  I distinctly remember managing my family cafe business in my mid twenties and could not bring myself to ask the casual employees to do the bin cleaning duty within their agreed job descriptions because I was mortified for them to have to do such a vile job.  I took the "popular and cool down to earth boss" option instead of the managerial responsibility and I cleaned the filthy stinking festering bins myself.  Then I went out (after a long hot shower to clean off the stink) with my employees every Friday night for very very social fun filled drinks.  Popularity and being "liked" by my employees was more desirable to me than being an effective leader and delegating fairly and properly in relation to the management structure or being clear about what was expected of them in THEIR role for the job they were commissioned to do.

It works.  For a while.  Then I have to put my "boss" hat on or my "disgruntled employee" hat or even my "client" hat on and deliver what must seem like a blow out of nowhere from a "friend."  So again I find myself in a stinking mess of festering rubbish, tricky politics and necessary clean up if I am to resolve either the business relationship and/or the friendship.  This brings me to my crossroads in "hanging in there" in charity world knowing that having the top job is not always all that tops (particularly when you have to be the actual bad guy boss however well or not well you try to do it in a friendly fashion under your many confusing hats).....

As I sit here and contemplate how exceedingly well I've managed to teach my children boundaries for every situation they currently need to adhere to them in, I must also contemplate why I allow myself to put short term social "likeability" before long term respect and effective business dealings (whether charitable or not).

What has this got to do with autism?  EVERYTHING.  An autism diagnosis when it first arrived in my world was all about impaired social development (I thought).  I was completely stuck on how terrible I thought it would be to have the wonderful world (to me anyway) of friendship, social acceptance and relationships of all kinds being so confusing or even inaccessible for my kids.  There is nothing more valuable to ME than friendship and love.  I get now that all that is my own "stuff" and my feelings about friendship being the be all and end all might not be everyone else's idea of what the meaning of life is.  I see now that the boys like having friends but may or may not be as socially motivated in their life decisions as me and that's their choice.  Whatever floats your own boat and all that jazz.

I do still strive to make my children's reality different to the stereotype of loneliness and isolation within a world of social confusion though so they do have options.  I help them set those clear boundaries in all aspects of life and it really seems to be helping them.  I just might be the epitome of that old adage that those who can DO and those who can't TEACH.  EEEKS!

If I could just learn the lessons I'm trying to pass on and dig my way out of the festering stench of garbage right now I might be better qualified to impart those lessons to the boys as they grow up and I might be able to salvage some of this "waste" into a an improved way of relating made from recycled traditions (like the drinks on Friday nights) and also some new materials like clearer boundaries and expectations.

Not sure how to go about it yet and I need some time to process, assess and regroup before I make any big moves or attempts at doing a clean up on a mess I'm not sure of what the magnitude is yet.  I don't have a lot of excess digging strength right now but hopefully soon I'll be calling in the whole clean up crew to give me a hand in the mop up and they accept by grabbing a broom, a mop, a shovel or even a ratty old rag to wipe with.

For my boys at least, I remain grateful for boundaries.  I hope to be able to say the same for me by at least NEXT year's Gratitude Project.